Our story in the daily mail


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  1. #1
    lyndsayseed
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  3. #2
    MissyS
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    I just want to give you guys a big hug

    I hope I get to meet Ben one day & your girls x
    Last edited by MissyS; 08-05-2008 at 09:06 PM.

  4. #3
    Calloo
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    you are both fantastic parents
    i can see from your pics as the article says he is a very happy boy
    you must very pleased with the article raising awareness will it go to other newspapers?? maybe tv?? i had tears reading it because it was written so sympathetically without being negative

    hugs to your family xx

  5. #4
    HeavenlyCharm
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    That's so sad Lyndsay! Been viewed worldwide going by the comments left so hope it does raise awareness!

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  6. #5
    loz78
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    aww Lyndsey i don't know what to say really but being a mum of 2 little ones....my heart goes out to you and your family xx
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  7. #6
    beanie
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    Lyndsey you have a lovely little boy, keep taking those photos.

  8. #7
    jammyforuuk
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    Default sorry

    Oh I am so sorry and to say you have a beautiful family keep taking the pics.

    Im sure we can all help raise awareness.

  9. #8
    mark
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    Such a cute boy
    Trying to reach a zero bank credit by the end of the year
    Hopefully transferring my savings so far to a new current account soon.

  10. #9
    lyndsayseed
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    thankyou he is gorgeous... even if i do say so myself!!
    http://www.facebook.com/profile.php?id=691530811 ~come and join me~

    http://myworld.ebay.co.uk/gemcharlucyben/ ~my e-bay~


    Our son is just 8, He has niemann-pick C, help us to find a cure ...
    http://www.justgiving.com/busforben

  11. #10
    mark
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    My Nan has this, and it's heart breaking, she has stopped eating recently and is forgetting us. It must be so much harder with a child, so sad
    Trying to reach a zero bank credit by the end of the year
    Hopefully transferring my savings so far to a new current account soon.


 

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